SLE Diary : Buku Gergasi

Assalamualaikum.

Selamat berhari Jumaat :)

Bangun pagi, jari-jari terasa kebas. Maybe tertindih kut, mujur Alhamdulillah tak berlarutan. Cuma sekarang, one of my fingers terasa agak semacam, lain dari yang lain. Entahla kenapa. My jari manis terasa macam berat, macam ada cincin je, padahal since yesterday, I didn’t wear any ring sebab semalam pun jari-jari terasa agak bengkak dan stiff.

Pagi ini dikejutkan dengan kedatangan Aunty Rahimah ke rumah. Semalam jumpa kat surau, pagi ni beliau datang ke rumah pulak. With her husband Uncle Amad. And dengan sebuah buku yang tebal giles. Terkejut bila tengok! So I guess I’ll be spending today reading a medical book, and get as many informations as I can about SLE. There are so many things about SLE, rheumatoid athritis, and bla bla bla. Memang dah feel medical student bila baca buku tu haha. My mak said, ‘ho pahni boleh doh tu sambung medik’ kehkeh. Baru je buku nursing actually, belum lagi buku medic yang betul-betul punya. Tapi seriously, so many new things pasal variety of penyakit ada dalam buku tu. Full of knowledge. Thanks to Aunty Rahimah and Uncle Amad cos they are willing to let me borrow the book. Thank you!

Reading the book, especially pasal SLE, woah, I feel so tak tahu apa-apa. Banyak rupanya benda yang boleh dapat daripada pembacaan buku tersebut. Selama ni asyik google je, even the doctors didn’t explain too much about SLE. I pun tak paham, setiap kali medical follow-up, doktor takde nye beria-ria expalin pasal SLE. Asyik senyap je. Tanya dua tiga soalan, bercakap pun dua tiga patah. From there I decided to google most everything pasal SLE. Luckily ada group for Lupus fighters dekat Facebook, atleast bolehla kongsi masalah, pengalaman, and so on. Kalau tak, memang takde nye nak tahu serba-serbi pasal sakit kita ni. From my view lah kan, the doctors should explain more to us patients. Memanglah there are a lot of medical terms yang kita tak paham, tapi atleast we know apa sakit tersebut. And if kita rasa macam motivated sikit, kita bolehlah ringan-ringankan diri to google it to know more. Kan kan?

Betul kata Aunty Rahimah. Those yang tak sakit, of course they would never understand what is happening to us. Lagi-lagi pesakit SLE. Rarely heard. So orang pun always fikir kita mengada-ngada, manja bila kita buat sesuatu benda. Orang tak faham keadaan kita, and obviously they would say such things. Tak boleh kena panas, tak boleh buat kerja-kerja lasak, tak boleh tu, tak boleh ni. So siapa lagi yang nak fahamkan dorang pasal SLE ni kalau bukan kita sendiri yang mengalami. That’s why we need to read a lot and understand sakit kita. I am trying to understand my SLE, how it would affect my future life, how to handle SLE symptoms dan macam-macam lagi. Even though orang sekeliling tak paham apa SLE ni, sekurang-kurangnya I know myself better, in facing SLE.

Tamat kisah SLE. Sorry lah sesiapa yang baca blog ni dan rasa mahu muntah sebab Ara asyik bercerita pasal SLE. It’s okay if you wanna feel like vomitting cuz I hope you feel so hahaha!

Thank you for reading my entry!

xoxo, Assalamualaikum!